A-Z Directory of Agencies

Association for Advancement of Brain Injured Children (AABIC) in WA Phone: (08) 9447 3590. The association provides equipment, library facilities, incontinence pad scheme and family support officers.

Able Play Toys and activities/play ideas for children with special

The Access Foundation provides Australian resources such as news, city guides, product directory, links, resources and contacts for people with disabilities. The products on this site are very basic but we find the access guides useful.

The Activ Foundation

The Activ library has an excellent up-to-date collection of more than 6000 books, journals and videos on disability with a particular focus on intellectual disability

The Association of Genetic Support Australasia A very good general reference site with loads of useful information and links

Australian Capital Territory (ACT) Equipment Scheme (ACT Health)The ACT Equipment Scheme offers funding to assist people with long term disabilities to obtain and maintain equipment to live at home in the community. Level One, Building 3 The Canberra Hospital Yamba Drive WODEN 2606 ACT Ph: 02 6244 2580

Australian Council for Health, Physical Education and Recreation Resources and programs for physical education & recreation

Australian Council for Health, Physical Education and Recreation, WA branch Resources and programs for physical education & recreation

Australian Council of Rehabilitations of the Disabled ACROD is the National Industry Association for Disability Services. ACROD works to increase the capacity of its members to operate effectively and efficiently and to influence public policy so that it is responsive to the needs of people with disabilities. ACROD issue parking permits, enabling people with disabilities easy access parking facilities.

The Australian Dyspraxia Support Group and Resource Centre was incorporated in 1998. The group consists of parents and professionals who have children or have an interest in helping children with dyspraxia. The group is independent of any other organization, self-funded and the peak representative body for Dyspraxia within Australia. Services include information, advocacy, referral, phone HELP-LINE, resources, family support and education across Australia. National Dyspraxia Awareness Week is held from the 1-8th of September.

Auties A networking site for people with autism. It allows people to find and support the work and skills of people with autism and provide access to potential work experience opportunities.

Autism Association of WA Showcases all of the research being conducted in WA in the field of autism. It also has information on Autism Journal Club events.

Autism Solutions Incorporated is a newly formed not-for-profit organisation formed to provide services for families with children within the Autism Spectrum.

Better Health Channel Packed full of resources including Health Fact sheets, Medical Dictionary, Directory of Services

Brain Injury Association of Queensland

There is plenty of information about disabilities on the Internet, but some lacks credibility and is unreliable. One excellent and reliable source of information is the British Medical Journal (BMJ), which is one of the few journals that is available to everyone who can access the Internet.

Care for Kids Online resource with information and tips on available child care options, costs, locations

Carers Net NZ is a valuable resource for carers of young families with disabilities. Has a useful care coach section.

Carers WA

Centrelink Find out about Carers Allowance, Carers Payment, Health Care Card, Rent Assistance, Disability Support Payment, Assistance for Isolated Children, Youth Disability Supplement and other financial assistance for children with special needs and carers of special needs children.

Centre for Cerebral Palsy The Centre for Cerebral Palsy is a charity, providing services and support to more than 1000 people living with cerebral palsy and their families throughout WA. TCCP offers therapy, counselling, financial assistance, information and resources to WA people with CP and CP like disorders.

Cerebral Palsy League of Queensland

Child Australia Formerly Resource Unit for Children With Special Needs (RUCSN). Child Australia supports the inclusion of children with additional needs i.e. those with a disability and/or from an Aboriginal or other cultural background, in Commonwealth funded children’s services i.e. Long Day Care, Family Day Care and school aged care. The service provides information, advice and equipment.

Australian Government’s Child Care Access Hotline for information on what options are available to you – 1800 670 305

Child’s Health Development Foundation health information, resources & programs.

CIS is the WA Department of Education division that supports government school communities to improve outcomes for students with special needs. The Centre’s core business is supporting services for students with disabilities and students with learning difficulties.

The Cochrane Library is put together by clinicians, consumers and researchers from around the world, and is a resource that can be used to support health care decisions and inform people receiving care. Although intended primarily for clinicians and researchers, the Cochrane Library contains much information that is directly relevant to consumers

Commonwealth Carelink Centres are a free National information service, providing information to people with disabilities and their carers on community disability care services. The aim of the service is to enhance independent living in the community by people with disabilities to local community care services.

Community Aids and Equipment Program WA Provides funding for therapist recommended equipment that is deemed basic and essential including postural, mobility, bathing and communication devices. This committee may also fund essential home modifications for those with disabilities.

Community Equipment Scheme (Tasmanian Department of Health & Human Services) The Community Equipment Scheme (CES) provides a variety of equipment and continence aids and appliances to eligible clients living in the community.

Southern Region: Repatriation Centre, Outreach Building 90 Davey Street, HOBART 7000 TAS Ph: 03 6222 7393

Northern Region: Launceston General Hospital 287-289 Charles Street, LAUNCESTON 7250 TAS Ph: 03 6348 7222

North West Region: Burnie Community Health Centre 11 Jones Street, BURNIE 7320 TAS Ph: 03 6430 6600

CP Australia

The Developing Foundation provide support (including financial) to families with children or adults who have suffered either a congenital (at or near birth) or a traumatic brain injury. The diagnoses of a brain injury may include autism, intellectually disability, acquired brain injury, developmental delay, cerebral palsy, genetic disorder etc.

The Developmental Disability Council of WA (Inc) is a peak agency, providing a co-ordinated and united voice for developmental disability. Through DDC, families, agencies and concerned individuals and groups work together in advocating for the rights of people with developmental disabilities in Western Australia.

Disability Services Commission The Disability Services Commission, established in December 1993 under the Disability Services Act 1993 (WA). DSC of WA provides disability services and support to people with disabilities, their families and carers. Services include Therapy, Counselling, Funding, Information and Resources. A local area co-odinator can manage your family and child’s needs. For info on Individual and Family Support Program page on DSC website click here. Respite program

Down Syndrome Association of WA works together for a better future for people with Down syndrome and their families. The association’s primary function is to provide mutual support by the sharing of information.

DREAMFIT People with disbalilties have dreams and aspirations just like everyone else and Dreamfit is all about making Innovative Recreational and Leisure equipment for People with Disabilties. Dreamfit is about making their dreams come true. See ski-ing, motor cycling, boating stylish and adapted equipment and more!

Education Department This site is your gateway to all aspects of the Department of Education’s school education services.

FACS Commonwealth Government department that works to ensure that people with disabilities, their families and carers are accepted as part of society. This site offers information on advocacy, legal rights, access, employment, carers, financial grants and assistance for people with special needs.

FOCAS Focus on Children within the Autism Spectrum Inc. This is a parent led organization, providing networking, resources and support for families of children with autism.

Guide Dogs Australia. Guide dog and info service for visually impaired. Head Office located at 2-4 Thomas St Chatwood NSW 2067. Phone 02 9412 9300 Email chatswood@guidedogs.com.au

Guide Dogs WA. Located at The Perron Centre 61 Kitchener Ave, Victoria Park (Directly opposite Vic Park train station). Open Monday-Friday 8.30am-5pm. Phone 08 9311 8202 or Toll Free 1800 847 466 (1800 VISION)

Genetic Services of Western Australia provides a range of diagnostic, treatment, counselling and investigative services for individuals and families with suspected or known hereditary (genetic) conditions. These services are provided through a team, which includes clinical geneticists and genetic counsellors, working closely with DNA and cytogenetic laboratories and other health professionals. Based at King Edward Memorial Hospital, 374 Bagot Road, SUBIACO WA 6008, however clinics operate statewide. Phone: (08) 9340 1525, Fax: (08) 9340 1678, E-mail: gswa@health.wa.gov.au

Healthy Lifestyles Bookshop Online Bookstore

Heart Foundation or National Heart Foundation

I.D. Entity WA Offers in-home and out-of-home respite services and camps for adolescents.

Independent Living Centre’s Showrooms that display equipment, devices and home modifications for enabling independence and access for those with special needs.Onsite O.T.’s and advisory services on equipment selection, home modification and building.Many of these centre’s offer equipment hire. Visit websites for information, resources and equipment libraries.

NSW ILC 1 Fennell Street NORTH PARAMATTA NSW 2150 Ph: 02 9890 0940 or 1300 885 886 Fax: (02) 9890 0966 Email: help@ilcnsw.asn.au QLD LifeTec Queensland PO Box 3241 NEWMARKET QLD 4051 Ph: 07 3552 9000 or 1300 885 886 Fax: 07 3552 9088 Email: mail@lifetec.org.au

SA ILC 11 Blacks Road GILLIES PLAINS SA 5086 Ph: 1800 800 523 Ph: (08) 8266 5260 Fax: (08) 8266 5263 Email: ilcsa@ilc.asn.au

TAS ILC 46 Canning Street LAUNCESTON TAS 7250 Ph: (03) 6334 5899 or 1300 885 886 Fax: (03) 6334 0045 Email: info@ilctas.asn.au

VIC Yooralla Society of Victoria ILC P.O. Box 200 Flinders Lane MELBOURNE VIC 3000 Ph: (03) 9650 4077 Fax: (03) 9654 7779 Email: yooralla@yooralla.com.au

WA ILC Suite A, 11 Aberdare Road NEDLANDS WA 6009 Ph: 1300 885 886 Fax: (08) 9381 0611 Email: general@ilc.com.au

International Rett Syndrome Association Information on research, genetics, education, therapies, communication and support groups.

If you would like to add your agency here, get in touch at info@specialaussies.com

The Kalparrin Centre provides practical and emotional support to families of children with a disability or special needs; assistance in locating information relating to specific disabilities and conditions, services, equipment, agencies and entitlements; assistance through the Parent Link Programme to families who wish to meet others in the same situation; and a drop-in lounge with tea and coffee facilities, microwave, TV / video and playroom. Twice yearly low cost camps are also organised to give mothers a break from the stresses involved in caring for a child with special needs. The Centre is also available for use by support groups.

Kids’ Camps Inc offers six-day camps for students with an intellectual disability. The camps provide participants with opportunities for recreation and social interaction, and respite for families and carers. We also offer weekend camps, departing Friday afternoon, returning Sunday afternoon. These less formal breaks take place just outside the metropolitan area, usually not more than an hour from Perth.

LifeTec Queensland Indedpendant Living Centre PO Box 3241 NEWMARKET QLD 4051 Ph: 07 3552 9000 or 1300 885 886 Fax: 07 3552 9088 Email: mail@lifetec.org.au

Literacy and Numeracy. This site has numerous resources for families to support children in their numeracy and literacy.

Medical Aids Subsidy Scheme (MASS) (Queensland Health) The Medical Aids Subsidy Scheme (MASS) provides eligible Queensland (Australian) residents with permanent and stabilised conditions or disabilities, access to subsidy funding for the provision of MASS endorsed aids and equipment. PO Box 1507 FORTITUDE VALLEY Qld 4006 Ph: (07) 3250 8555 Email: mass184@health.qld.gov.au

The Meningitis Centre Organisation offering information and resources to families affected by meningitis.

Modified Vehicles Organisation This site lists vehicles for sale in Western Australia that have been specially modified to cater for the transportation needs of people with disabilities.

www.mpssociety.org

Muscular Dystrophy Association of WA Inc (MDA) This association provides mutual support for families, carers and their families affected from neuromuscular diseases.

Music therapy is an allied health profession. It is the planned and creative use of music to attain and maintain health and well-being, and may address physical, psychological, emotional, cognitive and social needs of individuals within a therapeutic relationship. Music therapy focuses on meeting therapeutic aims, which distinguishes it from musical entertainment or music education. People of any age or ability may benefit, regardless of musical skill or background.

MyTime Parent support groups where parents can chat with other parents in similar situation. Follow the link to find a support group near you.

National Information, Communication and Awareness for People with Disabilities This site provides information on recreation, tourism, sport and the arts for people with disabilities. The site contains a database of over 4500 entries including information on useful places, accommodation facilities available to people with disabilities, activities and upcoming events.

Noah’s Ark is based in WA and provides services to children with special needs, including a toy library, camping and computer program for children and adolescents aged between 6-20 years

Novita Children’s Services

If you would like to add your agency here, get in touch at info@specialaussies.com

Parent Project MD Extremely informative website on muscular dystrophy

People First Programme (PIP) PIP supports people with an intellectual disability in human relationships, protective education and sexuality, along with parents, carers and service providers. Services are available in the Perth metropolitan area and regional WA. Educational Services are One-to-One Educational Services, Couple or Partner Education, Parent and Family Member Consultations, Community and Group Education, Professional and Service Provider Education, Schools, Womens Sexual and Reproductive Health and Counselling Services.

People With Disabilities WA. Consumer managed organisation that represents and advocates for the rights and equality of all Western Australians with disabilities – physical, intellectual, psychiatric and sensory.

Playgroup Australia can help you find local playgroups Australia wide.

Program of Appliances for Disabled People (PADP) (New South Wales Health) Program of Appliances for Disabled People (PADP) is a NSW Government program for people with disabilities. The role of PADP is to assist eligible residents of NSW who have a permanent or long-term disability to live and participate in their community by providing appropriate equipment, aids and appliances. PADP is administered through a number of Lodgement Centres throughout NSW. Contact your relevant Area Health Service for details of your nearest Lodgement Centre:

Northern Sydney Central Coast Area Health Service (Dept of Health) Ph: 02 4320 2333

South Eastern Sydney/Illawarra Area Health Service (Dept of Health) Ph: 02 4253 4888

Sydney South West Area Health Service (Dept of Health) Ph: 02 9828 5700 Sydney West Area Health Service (Dept of Health) Ph: 02 4734 2120 Greater Southern Area Health Service (Dept of Health) Ph: (02) 6128 9777

Greater Western Area Health Service (Dept of Health) Ph: (02) 6841 2222 Hunter New England Area Health Service (Dept of Health) Ph: 02 4921 4960 North Coast Area Health Service

If you would like to add your agency here, get in touch at info@specialaussies.com

Raising Children Network Online resource with all sorts of info on parenting – tips on sleep, toileting, disciplining, coping with stress, health and links to supports.

Raising Children Network’s section on raising a child with a disability

Recreation Network This site provides information and support to people with a disability who want to become involved in community recreation and sport.

The Register of Expert Witnesses is a free resource for the legal and insurance industries to access expert witness information and details of expert witnesses Australia-wide.

Rocky Bay WA Charity that provides in-home and out-of-home respite and domestic assistance to children and adults with disabilities with a particular focus on neuro-muscular and other neurological conditions.

Scope Online resource for parents/carers and people living with cerebral palsy. Packed full of useful info and tips on self care, play, games, communication, equipment, advocacy and MORE.

Senses Foundation is the primary service provider and advocate for people who are deafblind and people who are blind with an additional disability in Western Australia. Senses Foundation provides the following services to its clients and their families; Respite, Supported Recreation, Alternatives to Employment, Supported Accommodation, A Specialist Communication Service, Therapy including physiotherapy, occupational therapy and speech therapy, Counseling, Advocacy and a Consultative Services to other health professionals working with people who are deafblind.

Siblings Australia’s primary aim is to develop and co-ordinate services for families, and in particular, brothers and sisters of children with special needs (disability or chronic illness). It also assists health professionals to improve the service available for families, and in particular siblings.

Spastic Centre of NSW

Speech Pathology Australia’s library

Sussex St Community Law Service WA Free service offering Individual Disability Advocacy Service.

If you would like to add your agency here, get in touch at info@specialaussies.com

If you would like to add your agency here, get in touch at info@specialaussies.com

Victorian Aids and Equipment Services (Department of Human Services) Victorian Aids and Equipment Services provide a range of functional aids, equipment and home modifications to people with a permanent or long term disability to help them to live independently in the community. Disability Services Division, Department of Human Services (DHS) Level 8, 50 Lonsdale Street MELBOURNE 3000 VIC Ph: 1800 783 783 Fax: (03) 9096 9140TTY: 1800 008 149 Email: disability.services@dhs.vic.gov.au

Vision Australia Not for profit organisation providing services, facilities, and information to visually impaired persons. Phone 1300 84 74 66 Email info@visionaustralia.org To use TTY, call: (02) 9334 3260

Women With Disabilities Australia (WWDA) Online Information and Referral Directory. The Directory contains an extensive amount of information about services and organizations, such as; All disability and related organizations across Australia, including national organizations; Every legal centre and service in Australia; Organisations Australia wide that provide individual advocacy services to people with disabilities; Information on where to go to get aids and equipment; Details of services that can help with assisted reproduction; Agencies that deal with violence and abuse, including listings of crisis services, women’s shelters and more; All women’s health centres, services and organizations around Australia.

Yooralla Society of Victoria ILC Independent Living Centre P.O. Box 200 Flinders Lane MELBOURNE VIC 3000 Ph: (03) 9650 4077 Fax: (03) 9654 7779 Email: yooralla@yooralla.com.au